Bibliographies of User-/Survivor-led Research
For US audiences: a working list of US disability/user/survivor-led writings and papers broken up by topic is available here.
General User/Survivor Research Writings/Publications
Compiled by: Advancing User/Survivor Capacity & Leadership in Research
These resources were selected from the larger bibliography created by members of the international listserve and identified as being user-/survivor-led. This list is not comprehensive; additional articles will be regularly added.
Aadam, B., & Petrakis, M. (2020). Ethics, Values, and Recovery in Mental Health Social Work Practice. In R. Ow & A. W. C. Poon (Eds.), Mental Health and Social Work (pp. 1–21). Springer. https://doi.org/10.1007/978-981-13-0440-8_2-2
Beresford, P. (2019). Public Participation in Health and Social Care: Exploring the Co-production of Knowledge. Frontiers in Sociology, 3. https://doi.org/10.3389/fsoc.2018.00041
Beresford, P. and Croft, S. (1978), A Say In The Future: Planning, participation and meeting social need, London, Battersea Community Action.
Beresford, P. and Croft, S. (1986), Whose Welfare?: Private care or public services, Brighton, Lewis Cohen Urban Studies Centre.
Beresford P. and Croft, S. (1993), Citizen Involvement: A practical guide for change, 1993, Basingstoke, Macmillan.
Beresford, P and Turner, M. (1997), It's Our Welfare: Report of the Citizens' Commission on the Future of the Welfare State, London, National Institute for Social Work.
Beresford, P. Green, D. Lister, R. Woodard, K. (1999), Poverty First Hand, London, Child Poverty Action Group.
Sweeney, A. Beresford, P. Faulkner, A. Nettle, M. Rose, D. (editors), (2009), This Is Survivor Research, Ross-on-Wye, PCSS Books.
Beresford, P. (2010), A Straight Talking Guide To Being A Mental Health Service User, Ross-on-Wye, PCCS Books.
Beresford, P. Fleming, J. Glynn, M. Bewley, C. Croft, S. Branfield, F. and Postle, K. (2011), Supporting people: Towards a person-centred approach, Bristol, Policy Press.
Beresford, P. and Croft, S. (2012), User Controlled Research: Scoping Review, London, NHS National Institute for Health Research (NIHR) School for Social Car Research, London School of Economics.
Beresford, P. and Carr, S. (editors), (2012) Service Users, Social Care And User Involvement, Research Highlights Series, London, Jessica Kingsley Publishers.
Beresford, P. (2016), All Our Welfare: Towards Participatory Social Policy, Bristol, Policy Press.
Beresford, P. and Carr, S. (2018) Social Policy First Hand: An international introduction to participatory social welfare, Bristol, Policy Press.
Byrne, L., Happell, B., & Reid-Searl, K. (2015). Recovery as a Lived Experience Discipline: A Grounded Theory Study. Issues in Mental Health Nursing, 36(12), 935–943. https://doi.org/10.3109/01612840.2015.1076548
Byrne, L., Happell, B., & Reid-Searl, K. (2016). Lived experience practitioners and the medical model: World’s colliding? Journal of Mental Health (Abingdon, England), 25(3), 217–223. https://doi.org/10.3109/09638237.2015.1101428
Byrne, L., Happell, B., & Reid‐Searl, K. (2017). Acknowledging Rural Disadvantage in Mental Health: Views of Peer Workers. Perspectives in Psychiatric Care, 53(4), 259–265. https://doi.org/10.1111/ppc.12171
Byrne, L., Happell, B., & Reid-Searl, K. (2017). Risky business: Lived experience mental health practice, nurses as potential allies. International Journal of Mental Health Nursing, 26(3), 285–292. https://doi.org/10.1111/inm.12245
Byrne, L., Roennfeldt, H., O’Shea, P., & Macdonald, F. (2018). Taking a Gamble for High Rewards? Management Perspectives on the Value of Mental Health Peer Workers. International Journal of Environmental Research and Public Health, 15(4). https://doi.org/10.3390/ijerph15040746
Byrne, L., Roennfeldt, H., Wang, Y., & O’Shea, P. (2019). ‘You don’t know what you don’t know’: The essential role of management exposure, understanding and commitment in peer workforce development. International Journal of Mental Health Nursing, 28(2), 572–581. https://doi.org/10.1111/inm.12562
Byrne, L., Roper, C., Happell, B., & Reid-Searl, K. (2019). The stigma of identifying as having a lived experience runs before me: Challenges for lived experience roles. Journal of Mental Health (Abingdon, England), 28(3), 260–266. https://doi.org/10.1080/09638237.2016.1244715
Byrne, L., Stratford, A., & Davidson, L. (2018). The global need for lived experience leadership. Psychiatric Rehabilitation Journal, 41(1), 76–79. https://doi.org/10.1037/prj0000289
Carr, S. C., Hardy, A., & Fornells-Ambrojo, M. (2018). Relationship between attachment style and symptom severity across the psychosis spectrum: A meta-analysis. Clinical Psychology Review, 59, 145–158. https://doi.org/10.1016/j.cpr.2017.12.001
Carr, S., Hardy, A., & Fornells-Ambrojo, M. (2018). The Trauma and Life Events (TALE) checklist: Development of a tool for improving routine screening in people with psychosis. European Journal of Psychotraumatology, 9(1). https://doi.org/10.1080/20008198.2018.1512265
Colder Carras, M. (2018). Psychiatric nosology should be informed by multiple stakeholder perspectives. Open Science Framework. https://doi.org/10.17605/OSF.IO/Q2VVA
Colder Carras, M., & Bergendahl, M. (2020, May 21). Research in online communities: An interactive workshop on privacy and human subjects research considerations. Mental Health Un-Conference, Virtual Ability Island, Second Life. https://virtualability.org/mental-health-symposia/mental-health-symposium-2020/
Colder Carras, M., Brown, M., Foreman, A., Bergendahl, M., & Crouse, D. (2020, April). Meeting them where they are: Challenges and successes in turning online community support into formal suicide prevention. American Association of Suicidology.
Colder Carras, M., Carras, M., & Labrique, A. B. (2020). Stakeholders’ Consensus on Strategies for Self- and Other-Regulation of Video Game Play: A Mixed Methods Study. International Journal of Environmental Research and Public Health, 17(11). https://doi.org/10.3390/ijerph17113846
Colder Carras, M., Kalbarczyk, A., Wells, K., Banks, J., Kowert, R., Gillespie, C., & Latkin, C. (2018). Connection, meaning, and distraction: A qualitative study of video game play and mental health recovery in veterans treated for mental and/or behavioral health problems. Social Science & Medicine (1982), 216, 124–132. https://doi.org/10.1016/j.socscimed.2018.08.044
Colder Carras, M., Porter, A. M., Van Rooij, A. J., King, D., Lange, A., Carras, M., & Labrique, A. (2018). Gamers’ insights into the phenomenology of normal gaming and game “addiction”: A mixed methods study. Computers in Human Behavior, 79, 238–246. https://doi.org/10.1016/j.chb.2017.10.029
Davidson, L., Bellamy, C., Guy, K., & Miller, R. (2012). Peer support among persons with severe mental illnesses: A review of evidence and experience. World Psychiatry, 11(2), 123–128.
Faulkner, A., & Basset, T. (2012). A helping hand: Taking peer support into the 21st century. Mental Health and Social Inclusion. https://doi.org/10.1108/20428301211205892
Fletcher, E., & Barroso, A. (2019). Organizational dynamics at a peer respite: A focused ethnography of an emergent strategy. Social Work in Mental Health, 17(5), 509–532.
Fletcher, E., Barroso, A., & Croft, B. (2020). A Case Study of a Peer Respite’s Integration into a Public Mental Health System. Journal of Health Care for the Poor and Underserved, 31(1), 218–234.
Fletcher, E., & Bossewitch, J. (2020). STUDYING THE ICARUS PROJECT THROUGH DIGITAL BRICOLAGE: HOW DIGITAL PLATFORMS REFLECT SHIFTING STRATEGIES IN A SOCIAL MOVEMENT ORGANIZATION’S DEVELOPMENT. Practicing Anthropology, 42(2), 49–54.
Fletcher, E. H. (2016). Dis/Assembling schizophrenia on youtube: Theorizing an analog body in a virtual sphere. Journal of Medical Humanities, 37(3), 257–274.
Fletcher, E. H. (2018). Uncivilizing “mental illness”: Contextualizing diverse mental states and Posthuman emotional ecologies within the Icarus project. Journal of Medical Humanities, 39(1), 29–43.
Fletcher, E. H. (2019). “Boundary Formation” Within Mutual Aid Assemblages. Culture, Medicine, and Psychiatry, 43(1), 93–115.
Fletcher, E. H., & Barroso, A. (2020). “It’s a much more relaxed atmosphere”: Atmospheres of recovery at a peer respite. Emotion, Space and Society, 36, 100705.
Fletcher, E. H., & Price, D. M. (2019). Capacity and Non-Compliance: Mental Wellness Modules in a Community Health Worker Certification Course. Health Professions Education, 5(1), 39–47.
Grundy, A., Keetharuth, A. D., Barber, R., Carlton, J., Connell, J., Taylor Buck, E., ... Brazier, J. (2019). Public involvement in health outcomes research: Lessons learnt from the development of the recovering quality of life (ReQoL) measures. Health and quality of life outcomes, 17(1), . https://doi.org/10.1186/s12955-019-1123-z
Hansen, M., Jones, B., Eack, S., Glenthøj, L., Ikezawa, S., Iwane, T., Kidd, S., Lepage, M., Lindenmayer, J.-P., Ljuri, I., Maida, K., Matsuda, Y., Nakagome, K., Nordentoft, M., Ozog, V., Penney, D., Saperstein, A., Sunaga, A., Vinogradov, S., & Medalia, A. (2018). Validation of the MUSIC Model of Motivation Inventory for use with cognitive training for schizophrenia spectrum disorders: A multinational study. Schizophrenia Research, 206. https://doi.org/10.1016/j.schres.2018.11.037
Hansen, M., Vakhrusheva, J., Khan, S., & Kimhy, D. (2016, September 26). Impact of the Characteristics of Auditory Hallucinations on Quality of Life in People Diagnosed with Schizophrenia.
Happell, B., Bocking, J., Scholz, B., & Platania-Phung, C. (2019). The tyranny of difference: Exploring attitudes to the role of the consumer academic in teaching students of mental health nursing. Journal of Mental Health. https://www.tandfonline.com/doi/abs/10.1080/09638237.2019.1581344
Happell, B., & Roper, C. (2006). The myth of representation: The case for consumer leadership. Australian E-Journal for the Advancement of Mental Health, 5(3), 177–184. https://doi.org/10.5172/jamh.5.3.177
Happell, B., & Roper, C. (2007). Consumer participation in mental health research: Articulating a model to guide practice. Australasian Psychiatry: Bulletin of Royal Australian and New Zealand College of Psychiatrists, 15(3), 237–241. https://doi.org/10.1080/10398560701320113
Jones, N. (n.d.). Peer involvement & leadership in early intervention for psychosis: From planning to evaluation. National Association of State Mental Health Program Directors. https://www.nasmhpd.org/sites/default/files/Peer-Involvement-Guidance_Manual_Final.pdf
Jones, N. (2012). Antipsychotic medications, psychological side effects and treatment engagement. Issues in Mental Health Nursing, 33(7), 492–493. https://doi.org/10.3109/01612840.2012.686560
Jones, N. (2019b). Rethinking Consumer Empowerment (and Systems Change) Through the Lessons of Self-Directed Care. Psychiatric Services, 70(3), 165–165. https://doi.org/10.1176/appi.ps.70301
Jones, N., Bower, K., & Furuzawa, A. (2016). Back to school: Toolkits to support college students with early psychosis. National Association of State Mental Health Program Directors. https://www.nasmhpd.org/sites/default/files/Toolkit-Back_to_School_Support_for_Full_Inclusion_of_Students_Family_Edition.pdf
Jones, N., & Brown, R. (2012). The Absence of Psychiatric C/S/X Perspectives in Academic Discourse: Consequences and Implications. Disability Studies Quarterly, 33(1). https://doi.org/10.18061/dsq.v33i1.3433
Jones, N., Brown, R., Keys, C., & Salzer, M. (2015). Beyond symptoms? Investigating predictors of sense of campus belonging among postsecondary students with psychiatric disabilities. Journal of Community Psychology, 43. https://doi.org/10.1002/jcop.21704
Jones, N., Corrigan, P. W., James, D., Parker, J., & Larson, N. (2013). Peer support, self-determination, and treatment engagement: A qualitative investigation. Psychiatric Rehabilitation Journal, 36(3), 209–214. https://doi.org/10.1037/prj0000008
Jones, N., Gius, B., Daley, T., George, P., Rosenblatt, A., & Shern, D. (2020). Coordinated Specialty Care Discharge, Transition, and Step-Down Policies, Practices, and Concerns: Staff and Client Perspectives. Psychiatric Services, 71(5), 487–497. https://doi.org/10.1176/appi.ps.201900514
Jones, N., Godzikovskaya, J., Zhao, Z., Vasquez, A., Gilbert, A., & Davidson, L. (2019). Intersecting disadvantage: Unpacking poor outcomes within early intervention in psychosis services. Early Intervention in Psychiatry, 13(3), 488–494. https://doi.org/10.1111/eip.12508
Jones, N., Harrison, J., Aguiar, R., & Munro, L. (n.d.). Transforming Research for Transformative Change in Mental Health: Toward the Future. In Community Psychology and Community Mental Health. Oxford University Press. Retrieved July 28, 2020, from https://www.oxfordscholarship.com/view/10.1093/acprof:oso/9780199362424.001.0001/acprof-9780199362424-chapter-17
Jones, N., & Kelly, T. (2015). Inconvenient Complications: On the Heterogeneities of Madness and their Relationship to Disability. https://doi.org/10.2307/j.ctt1t898sg.8
Jones, N., Kelly, T., & Shattell, M. (2016). God in the brain: Experiencing psychosis in the post-secular United States. Transcultural Psychiatry.
Jones, N., Kosyluk, K., Gius, B., Wolf, J., & Rosen, C. (2019). Investigating the mobility of the peer specialist workforce in the United States: Findings from a national survey. Psychiatric Rehabilitation Journal. https://doi.org/10.1037/prj0000395
Jones, N., & Luhrmann, T. M. (2016). Beyond the sensory: Findings from an in-depth analysis of the phenomenology of “auditory hallucinations” in schizophrenia. Psychosis, 8(3), 191–202. https://doi.org/10.1080/17522439.2015.1100670
Jones, N., Marino, C. “Khaki,” & Hansen, M. C. (2016). The Hearing Voices Movement in the United States: Findings from a national survey of group facilitators. Psychosis, 8(2), 106–117. https://doi.org/10.1080/17522439.2015.1105282
Jones, N., Niu, G., Thomas, M., Riano, N. S., Hinshaw, S. P., & Mangurian, C. (2019). Peer Specialists in Community Mental Health: Ongoing Challenges of Inclusion. Psychiatric Services, 70(12), 1172–1175. https://doi.org/10.1176/appi.ps.201800552
Jones, N., Rosen, C., Helm, S., O’Neill, S., Davidson, L., & Shattell, M. (2019). Psychosis in public mental health: Provider perspectives on clinical relationships and barriers to the improvement of services. The American Journal of Orthopsychiatry, 89(1), 95–103. https://doi.org/10.1037/ort0000341
Jones, N., Rosen, C., Kamens, S., & Shattell, M. (2018). “It was definitely a sexual kind of sensation”: Sex, sexual identity, and gender in the phenomenology of psychosis. Psychosis: Psychological, Social and Integrative Approaches, 10(2), 122–131. https://doi.org/10.1080/17522439.2018.1469036
Jones, N., & Shattell, M. (2013). Engaging with voices: Rethinking the clinical treatment of psychosis. Issues in Mental Health Nursing, 34(7), 562–563. https://doi.org/10.3109/01612840.2013.783659
Jones, N., & Shattell, M. (2014). Beyond Easy Answers: Facing the Entanglements of Violence and Psychosis. Issues in Mental Health Nursing. https://doi.org/10.3109/01612840.2013.856971
Jones, N., & Shattell, M. (2016a). Not what the textbooks describe: Challenging clinical conventions about psychosis. Issues in Mental Health Nursing, 37(10), 769–772. https://doi.org/10.1080/01612840.2016.1180725
Jones, N., & Shattell, M. (2016b). Taking Stock of the Challenges and Tensions Involved in Peer Leadership in Participatory Research about Psychosis and a Call to do Better. Issues in Mental Health Nursing, 37(6), 440–442. https://doi.org/10.3109/01612840.2015.1124955
Jones, N., Shattell, M., Kelly, T., Brown, R., Robinson, L., Renfro, R., Harris, B., & Luhrmann, T. M. (2016). “Did I push myself over the edge?”: Complications of agency in psychosis onset and development. Psychosis, 8(4), 324–335. https://doi.org/10.1080/17522439.2016.1150501
Jones, N., Teague, G. B., Wolf, J., & Rosen, C. (2020). Organizational climate and support among peer specialists working in peer-run, hybrid and conventional mental health settings. Administration and Policy in Mental Health and Mental Health Services Research, 47(1), 150–167. https://doi.org/10.1007/s10488-019-00980-9
Larsen-Barr, M., Seymour, F., Read, J., & Gibson, K. (2018a). Attempting to stop antipsychotic medication: Success, supports, and efforts to cope. Social Psychiatry and Psychiatric Epidemiology, 53, 745–756. https://doi.org/10.1007/s00127-018-1518-x
Larsen-Barr, M., Seymour, F., Read, J., & Gibson, K. (2018b). Attempting to discontinue antipsychotic medication: Withdrawal methods, relapse and success. Psychiatry Research, 270, 365–374. https://doi.org/10.1016/j.psychres.2018.10.001
Larsen-Barr, M. T., & Glynn Owens, R. (2013). Transdiagnostic support and education can reduce anxiety in people diagnosed with schizophrenia spectrum disorders. Psychosis, 5(2), 197–199. https://doi.org/10.1080/17522439.2012.686517
Larsen-Barr, M.T. (2009). The transdiagnostic approach to anxiety treatment in an education and support group setting.
Newbigging, K., McKeown, M., & Machin, K. (2012). The right to be heard: Independent mental health advocacy services in England. University of Central Lancashire. https://www.uclan.ac.uk/research/explore/projects/assets/mental_health_wellbeing_mht_the_right_to_be_heard.pdf
Lofthus, A. M., Weimand, B. M., Ruud, T., Rose, D., & Heiervang, K. S. (2018). “This is not a Life Anyone would want”—A Qualitative Study of Norwegian ACT Service users' Experience with Mental Health Treatment. Issues in Mental Health Nursing, 39(6), 519-526. https://doi.org/10.1080/01612840.2017.1413459
Neale, J., Vitoratou, S., Finch, E., Lennon, P., Mitcheson, L., Panebianco, D., ... Marsden, J. (2016). DEVELOPMENT AND VALIDATION OF ‘SURE’: A PATIENT REPORTED OUTCOME MEASURE (PROM) FOR RECOVERY FROM DRUG AND ALCOHOL DEPENDENCE. Drug and alcohol dependence, 165, 159–167. https://doi.org/10.1016/j.drugalcdep.2016.06.006
Ostrow, L., Nemec, P. B., & Smith, C. (2018). Self-Employment for People with Psychiatric Disabilities: Advantages and Strategies. The Journal of Behavioral Health Services & Research. https://doi.org/10.1007/s11414-018-9625-8
Ostrow, L., Steinwachs, D., Leaf, P. J., & Naeger, S. (2017). Medicaid Reimbursement of Mental Health Peer-Run Organizations: Results of a National Survey. Administration and Policy in Mental Health, 44(4), 501–511. https://doi.org/10.1007/s10488-015-0675-4
Pallesen, K., Brown, J., Rose, D., & Lawrence, V. (2020). An interpretative phenomenological analysis of the experience of receiving a diagnosis of bi-polar disorder. Journal of Mental Health, 29(3), 358-363. https://doi.org/10.1080/09638237.2020.1755020
Repper, J., & Carter, T. (2011). A review of the literature on peer support in mental health services. Journal of Mental Health (Abingdon, England), 20(4), 392–411. https://doi.org/10.3109/09638237.2011.583947
Rose, D. (2020). On personal epiphanies and collective knowledge in survivor research and action. SOCIAL THEORY AND HEALTH, 18(2), 110–122. https://doi.org/10.1057/s41285-019-00087-z
Rose, D. S., & Kalathil, J. (2019). Power, Privilege and Knowledge: the Untenable Promise of Co-production in Mental ‘Health’ . Frontiers in Sociology, 4(JUL), 1-11. . https://doi.org/10.3389/fsoc.2019.00057
Rose, D. S. (2019). Navigating an Insider / Outsider Identity in Exclusive Academic Spaces: How Far Can Boundaries be Pushed? Journal of Ethics in Mental Health.
Rose, D. (2018). Participatory research: real or imagined. Social Psychiatry and Psychiatric Epidemiology, 53(8), 765-771. https://doi.org/10.1007/s00127-018-1549-3
Rose, D., Carr, S., & Beresford, P. (2018). ‘Widening cross-disciplinary research for mental health’: what is missing from the Research Councils UK mental health agenda? Disability and Society, 33(3), 476-481. https://doi.org/10.1080/09687599.2018.1423907
Rose, D. (2018). A hidden activism and its changing contemporary forms: Mental health service users / survivors mobilising. Journal of Social and Political Psychology, 6(2), 728-744. https://doi.org/10.5964/jspp.v6i2.952
Rose, D. (2017). Service user/survivor-led research in mental health: epistemological possibilities. Disability and Society, 32(6), 773-789. https://doi.org/10.1080/09687599.2017.1320270
Robinson, K. J., Rose, D., & Salkovskis, P. M. (2017). Seeking help for obsessive compulsive disorder (OCD): A qualitative study of the enablers and barriers conducted by a researcher with personal experience of OCD. Psychology and Psychotherapy: Theory, Research and Practice. https://doi.org/10.1111/papt.12090
Rose, D., MacDonald, D., Wilson, A., Crawford, M., Barnes, M., & Omeni, E. (2016). Service user led organisations in mental health today. Journal of Mental Health, 1-6. https://doi.org/10.3109/09638237.2016.1139070
Schweizer, R., Honey, A., Hancock, N., Berry, B., Waks, S., & Scanlan, J. N. (2018). Consumer-provider relationships in a care coordination model of service: Consumer perspectives. Advances in Mental Health, 16(1), 88–100. https://doi.org/10.1080/18387357.2018.1425095
Sinclair, A. (2018). Help yourself to our staff kitchen: A peer worker’s reflections on microaggressions. The Journal of Mental Health Training, Education and Practice. https://doi.org/10.1108/JMHTEP-06-2017-0042
Spandler, H., & Poursanidou, K. (Dina). (2019). Who is Included in the Mad Studies Project? Journal of Ethics in Mental Health, Special Theme Issue VI. https://jemh.ca/issues/v9/theme6.html
Susanti, H., James, K., Utomo, B., Keliat, B. A., Lovell, K., Irmansyah, I., ... Brooks, H. (2019). Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers. Health Expectations. https://doi.org/10.1111/hex.13007
Sweeney, A., Davies, J., Mclaren, S., Whittock, M., Lemma, F., Belling, R., ... Wykes, T. (2016). Defining continuity of care from the perspectives of mental health service users and professionals: An exploratory, comparative study. Health expectations : an international journal of public participation in health care and health policy, 19(4), 973-987. https://doi.org/10.1111/hex.12435
Timoclea, R. (n.d.). Anorexia Mirabilis: Voluntary self starvation and the role of spirituality as a legitimate response to sexual violence. In Adlam, J., Kluttig, T., & Lee, B. (Eds.). (2018). Violent States and Creative States (Volume 2): Human Violence and Creative Humanity. Jessica Kingsley Publishers. https://books.google.co.uk/books?hl=en&lr=&id=BfZMDwAAQBAJ&oi=fnd&pg=PA95&dq=robyn+timoclea&ots=sbEjvFTIeQ&sig=qsUOGR4-kcn3bERaEbZCZpE7hLM
Voronka, J. (2019). Storytelling Beyond the Psychiatric Gaze. Canadian Journal of Disability Studies, 8(4), 8–30.
Waks, S., Scanlan, J. N., Berry, B., Schweizer, R., Hancock, N., & Honey, A. (2017). Outcomes identified and prioritised by consumers of Partners in Recovery: A consumer-led study. BMC Psychiatry, 17(1), 338. https://doi.org/10.1186/s12888-017-1498-5
Wells, K., Hancock, N., & Honey, A. (2020). The experience of living after ECT: A qualitative meta-synthesis. Journal of Mental Health, 0(0), 1–15. https://doi.org/10.1080/09638237.2020.1739244
Wells, Karen, Scanlan, J. N., Gomez, L., Rutter, S., Hancock, N., Tuite, A., Ho, J., Jacek, S., Jones, A., Mehdi, H., Still, M., & Halliday, G. (2018). Decision making and support available to individuals considering and undertaking electroconvulsive therapy (ECT): A qualitative, consumer-led study. BMC Psychiatry, 18(1), 236. https://doi.org/10.1186/s12888-018-1813-9
Williams, O., Sarre, S., Papoulias, C., Knowles, S., Robert, G., Beresford, P., ... Palmer, V. (2020). Lost in the shadows: reflections on the dark side of co-production. Health Research Policy and Systems, 18, . https://doi.org/10.1186/s12961-020-00558-0
Yeung, W. S., Hancock, N., Honey, A., Wells, K., & Scanlan, J. N. (2020). Igniting and Maintaining Hope: The Voices of People Living with Mental Illness. Community Mental Health Journal, 56(6), 1044–1052. https://doi.org/10.1007/s10597-020-00557-z